Those thumbs :) this is BONES!

Ok I do admit that spelling is not my best talent. Neither in Swedish or English. 

But so fun when my thumb misspelled the word BONES. The word that has been a big part of my life for the past 15y since my son Hugo was diagnosed with FOP. 

I Blog from my iPhone and sometimes/often my thumbs don’t connect with the screen or with the letter next to the correct letter and that is really frustrating. Especially when I am a person not so good at spelling at first hand :):) 

FOP stands for Fibrodysplasia Ossificans Progressiva and it means that Mucles Tendonds and Ligaments is turning in to BONE! A transformation like a scary science fiction movie. Like an extra skeleton.  And if you read my previous blog post, look at the muscles that surrounds my ribs. Imagin those turning in to bone so the ribs cant expand when you breath because the extra skeleton put your body in a prison… This is my son ❤️

Hejsvejs – Marie 


Stöd FOP Forskningen. 

Bankgiro 5823-7140.

Swish nummer 123 640 26 30.

FOP Sverige

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